Amyotrophic Lateral Sclerosis
To keep it simple, here are some quick bullet points.
It's a progressive neurodegenerative (nerves & muscles) disease, that is 100% fatal. That can effect anyone.
There are two types of ALS.
Sporadic ALS: Most common 90-95% of cases.
Familial ALS (FALS) is 5-10% of cases (Inherited, 50% chance offspring will inherit the gene)
Rare. 6K in US diagnosed and projected that 20K have it in the US.
Average age it happens to is 40-70 years old. 60% recorded are men and 93% recorded are caucasian.
Average life expectancy, from time of diagnoses 2-5 years.
Why ALS is close to my heart
Our Father was diagnosed with ALS late July 2016. His symptoms started around January 2016 with slight loss of strength in his hands and progressively got worse. I contacted the ALS association (Orange County Chapter) in August 2016 and spoke with Natalie and a few others. I was amazed by the empathetic/sympathetic support they have already offered in our Dads stages of this EVIL disease. Our Dad is a former gymnast, well know judge and coach within the gymnastics community. So much so that our Dad is in the Gymnastic Judges Hall Of Fame (2011). It was extremely hard to see our Father, a man who has been so physically strong, become physically weak.
IN HOME HAIR SERVICES OFFERED
I have never offered any travel services but it was brought to my attention from the ALS association that there is a need for in home hair services in Orange County for hair cuts, coloring and styling for people with advanced stages of ALS and have trouble getting out of the house.
9/3/18 our Dad has moved up to Oregon to be with his Mom for his last days. My brother Jon and I had the privilege to drive up and help them get settled in. My brothers and I are hoping to celebrate our Dads 70th birthday together in Oregon, October 19th. Thank you all for your continued support and prayers for our family, my Dads wife Linda and his Mom Leona during this time.
9/19/18 our Dad was able to celebrate his 70th birthday with myself, my two brothers, niece, cousin, his mom, wife and sister in law!
11/9/18 our Dad has about 5% of his voice left and is feeling the struggle of breathing etc. Please pray! I will head back up to Oregon again on 11/30/18
11/25/18 our Dad lost his battle with ALS at 3:30am in his sleep. Thank you all for your love, support and prayers during this time of extreme heart ache and grief.